Jenny McCarthy has a new book out about families that were able to "cure" autism. I saw it at Target tonight while waiting for my antibiotic.
And guess what?
I'm not reading it. Sorry, I know my husband met her years ago, but I have to draw my line.
Now I'm glad everything worked for her son and he is doing much better. But she is in a different position than most people dealing with Autism. And usually I rip on Autism treatments, but follow me here.
She has more power and celebrity that the average person. She mentions in
Louder than Words she refinanced her house to pay for treatment. I'm sure her house costs many times more than mine. She has celebrity status and celebrity friends to help out. She lives near premiere medical centers for the country. Holly Robinson Peete gave her direction what she needed to do to "pull him through the window." The average person does not have anything but some referrals from a doc, some acquaintances in the same boat and articles about treatments they may see on the web, on TV or in a magazine. The average person dealing with a disability is pretty much in the same boat as any of their friends whose child has a disability. Ok, one may have better insurance than the other, but that doesn't say much these days.
I'm sure people are going to read her new book and figure out how to modify their child's diet at home. Fine, take dairy/wheat/preservatives out of the diet. Better for the child in the long run, if it affects them. There is a greater cost for the foods you feed the child, but nothing like some of these treatments suggested for autistic children.
What scares me is people who read about chelation and decide to try it for their, damned be the cost! The government just canceled their study of this treatment. I worked with a woman years ago whose daughter had lead poisoning and from what she relayed to me, chelation therapy is painful and nasty for the person going through it. And can lead to death along with a list of side effects.
If I had an Autistic child, I may try to modify the diet myself (with books and the internet for help) and get the kid into therapies I could get through insurance, school or an organization. Then, probably work at home with the child after school and such. But that would be where I would stop.
I love my kids, please don't get me wrong, but sometimes you have to say, this is what we can do for you. My son has Sensory Integration Disorder. Yes, I love him. His therapy is what he gets at school and what we do at home with him. Why do you think we have a ball pit in our basement? He is on the Feingold program, just for food dyes. He does not react to preservatives. But bankruptcy is not good for him or anyone else who lives under this roof. What good are we going to be as a family chasing cures for him when my daughter won't be able to take gymnastics or join Girl Scouts? What about putting food on the table, a roof over our heads and clothes on our backs?
When I went to the mommy event for the first grade moms, I met a couple moms whose sons had SID. Someone who knows what I go through! Some kindred souls.
Not really or even close. The moms talked to me how I should take my son to a local center that tests kids for vitamin and mineral deficiencies. That the "window" on curing him is closing and if I don't do something he will never be cured. The one woman's son had been "cured" and the other woman's son was heading that way. And they will get me the information for this place because it is IMPORTANT to get him CURED. NOW! Oh and that the books are wrong and doctors don't know what they are doing. And then, wouldn't be to your advantage so he can attend the Catholic school without any issues?
Now, I read
Out Of Synch Child and I NEVER in any of those pages saw about curing a kid with SID. He's learning to deal with his issues well and that is the best I can hope for. We talked to the school and within reason, they will work with us, they have a few high functioning Autistic kids in school now. Maybe I should take him for an evaluation, could be interesting to see what they tell me. If insurance will cover it.